sleep study

Last week Gavin had a sleep study done at Scottish Rite. This is a test where with a lot of wires, electrodes and cables they determine how well you are holding your oxygen concentration levels while you sleep. We scheduled this study because months ago when he did it he was still on oxygen and they decided that he needed at the time during sleep. Of course we have been off oxygen all together for awhile now but the home health company wont pick up the tanks until he had the test again and it came back clear. The pulmonologist weaned him off his oxygen and we have been spot checking his levels and they have been great. so we all had no concern about the test. One of those things that where God is showing us we don't quite have all this figured out because much o our surprise, and the doctors, he failed his test. He dropped his 02 sats 7 times during the test as low as 81%. Not good. So they put him back on oxygen while he is sleeping. To me this feels like a huge step backwards. I know it doesn't seem like such a big deal but I was so excited about waling into his nursery and it looking like a baby's room, not a hospital room. about it looking "normal". I was so ready to get rid of everything. But here we are. It is not permanent and in the end I just rocked a miracle to sleep so I feel blessed, no matter what challenges we face. That being said, Gavin with oxygen now and Gavin a few months ago, totally different. He now has such a personality and opinion and he is strong. He hates it! He pulls it off repeatedly.  This is going to be a long few months!

Also happening in life right now Ethan and Aiden started to school. Aiden is in preschool (2yr old class). I can't believe how fast he is growing up. He is so proud. He walked bravely into his classroom and hasn't shed a tear. He comes home and races to hang his freshly made picture on the fridge still wet with paint or dripping glue. He is glowing with pride to be big just like Ethan. Of course Ethan is doing great and is adjusting very well to the new school and new teachers. He loves it and the teachers have already said he is ahead. Thank to his willingness to learn at home. He is being such a good big brother and encouraging Aiden. It truly is so heartwarming to watch and bittersweet to see them getting bigger. Aiden went to school both days in underwear and kept them dry.

This week has been one of those where each day has been undoubtedly touched by God. We have been praying earnestly about our fiances and family schedule. having 2 preemies is expensive and we just don't ever seem to be catching up let along getting ahead. I had applied for a few jobs unsure of just what I thought we needed to do. God opened a door with a company and I explored the opportunity. I was excited about it yet afraid of making the change. I was praying that God would really show me his will. And through one of my labor pts he exclaimed it loudly. My pt out of no where told me she thought I would make a great pediatric nurse and went on to tell me about an awesome company that came to her house to help take care of her son. It was the exact company I had just interviewed with. as soon as I walked out of her room they left a message on my cell offering me a job. I took it! I went to orientation and I have feel  in love with it. I am going to be caring for a preemie little boy who I feel is a perfect fit for me. I dropped down to 2 days a week in labor and delivery and picked up 2 days a week in home health. It will give me an extra day of pay and also allow me to work 9-5 on my home health days eliminating dragging the boys out of bed at 5:30 am and taking them to the firestation or work with me. I feel so good about the decision and affirmed by God. Also we have recently dwindled down our breastmilk supply and we have been stressing about the cost of formula. In the past week I have gotten 12 cans of powdered formula and 46 ready made bottles of formula for free. God is good and shows us he is always in control.

Stollen from Kelly Hampton, one of my favorite blogs:


"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others...for the countless unknown souls with whose fate we are connected by a bond of sympathy. Many times a day, I realize how much my outer and inner life is built upon the labors of people, both living and dead, and how earnestly I must exert myself in order to give in return as much as I have received.” Albert Einstein